Miracle Child Wows Many Fighting Life Threatening Syndrome - kcentv.com - KCEN HD - Waco, Temple, and Killeen

Miracle Child Wows Many Fighting Life Threatening Syndrome

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She's being called a miracle child.

Eight-year-old Haelie Pisciotta was never expected to survive her first year of life.

But thanks to some amazing Scott and White doctors, she's now living her dreams.

Haelie has survived more than most adults could ever imagine.

"I had four multi-organ transplants," said Haelie.

When her mom Kelly was just 18-weeks pregnant with Haelie, the doctors told her that Haelie had an enlarged bladder.

They didn't know why, and it didn't look good.

"At that point they started digging and looking to see what else was going on," said Kelly Pisciotta.

But it wasn't until Haelie was born that a mysterious disorder would be discovered.

"It's, Megacystis-microcolon-intestinal hypoperistalsis, essentially what that means is she was born with a bladder that doesn't function, and most of her intestine doesn't function," said Scott & White Pediatric Surgeon Kelly Mattix.

"When Haelie was first born there were less than 100 known cases of her disorder nationwide.

And the majority of those babies didn't make it past six months.

"It's been a tough road, its not been easy, we spent nine months in Cincinnati after her transplant," said Kelly.

But with the help of doctors and a fighting family, Haelie is now living life to the fullest.

"Cartwheels, like back hand springs with help, a round off and one handed cartwheels," said Haelie.

And it doesn't stop there.

To help give back to McLane Children's Hospital, which is part of Scott and White, that's helped her so much.

Haelie and her sister McKenzie are modeling in the nationally-known American Girl Fashion Show benefiting the hospital.

"I have an American girl doll and so I really wanted to do it," said Haelie.

"I want her to live I want her to be a normal eight-year-old you know with what she can do," said KellY.

Enjoying being a normal eight year old, is all this mother wants for her little girl.

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